Long time, no blog…<\/p>\n
Let me first thank everyone on behalf of us Bromee’s for all that you’ve done for us.\u00a0 We are eternally grateful.<\/p>\n
I suppose many of you are wondering how I am doing.\u00a0 Well, you know, as they say take each day at a time.\u00a0 Some days are better than others.\u00a0 Physically, I’m ok.\u00a0 Not fabulous, not sickly.\u00a0\u00a0 Pretty much just ok.\u00a0 I continue to take the prescriptions, that I wont be taking forever, in a “taper off” sorta thing.\u00a0 One at a time.\u00a0 Slowly.\u00a0 Yes…gotta do it slowly.\u00a0 Or else scary bad things could happen.\u00a0 Someday I’ll only be on three or four prescriptions several times a day.\u00a0\u00a0\u00a0<\/p>\n
From a\u00a0cognitive perspective, here’s the\u00a0story.\u00a0 I continue to have speech issues.\u00a0 I can think\u00a0what I’m trying to say, but many times cannot get the words out.\u00a0 Because I am so aware of it, when it’s happening I kinda start to “panic” and that makes it worse.\u00a0 So I feel like I am much less articulate than I was.\u00a0 I was never one to step on my own speech.\u00a0 Well, not on a regular basis anyway.\u00a0 Now it’s part of me that I need to get used to.\u00a0 I also have a lack of ability to multitasking as I used to.\u00a0\u00a0I get flustered\u00a0trying concentrate on more than one thing at a time.\u00a0 And even sometimes just one thing.\u00a0 I’d be completely screwed if I didn’t have Kasey.\u00a0 She continues to keep\u00a0things\u00a0together.\u00a0<\/p>\n
We’re\u00a0heading back down to Boston this Friday for my next MRI.\u00a0 Like all MRI’s since the fateful day, I fear them.\u00a0 I’m not\u00a0claustrophobic or have anything like that, but having my head strapped down and put inside of a tube has a different meaning for me as it probably does for all of you.\u00a0 For those that don’t know the superfine details of the story, on December 3rd I went in to the tube and nearly didn’t come out alive as I had a brain tumor induced\u00a0gran mal seizure in there.\u00a0 So yeah…I know it must be done, and I am on a truckload of anti-seizure meds that nothing would likely go the way it did on that Friday in December.<\/p>\n
Another reason for my visit to Boston is to see if the chemo-drug I was on during my stay down there is working.\u00a0 If so, I will start on a 5-day on and 21-day off schedule until further notice.\u00a0 I do have another MRI again in six weeks.\u00a0 That one will hope to show how much of my growth was annihilated.\u00a0 And how much might be there to continue to do it’s damage.\u00a0 And a prognosis…if there can be one.\u00a0 A prognosis for my condition pretty much doesnt exist.\u00a0 They come up with something and most of the time it’s quite different.<\/p>\n
\u00a0This is the 40th post.\u00a0 It ends\u00a0the chapter of “The First Day Of The Rest Of My Life”.\u00a0\u00a0And so it goes.\u00a0 The future is unknown.\u00a0 \u00a0<\/p>\n
\u00a0<\/p>\n
“Live as if you were to die tomorrow.\u00a0 Learn as if you were to live forever” – \u00a0Gandhi<\/p>\n
\u00a0<\/p>\n
Peace and Love,<\/p>\n
Rob, Kasey, Cooper, Sadie, Schatzi, and ZenFish<\/p>\n","protected":false},"excerpt":{"rendered":"
Long time, no blog… Let me first thank everyone on behalf of us Bromee’s for all that you’ve done for us.\u00a0 We are eternally grateful. I suppose many of you are wondering how I am doing.\u00a0 Well, you know, as they say take each day at a time.\u00a0 Some days are better than others.\u00a0 Physically, […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3],"tags":[],"class_list":["post-442","post","type-post","status-publish","format-standard","hentry","category-personal-observations"],"_links":{"self":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts\/442","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=442"}],"version-history":[{"count":10,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts\/442\/revisions"}],"predecessor-version":[{"id":452,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts\/442\/revisions\/452"}],"wp:attachment":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=442"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=442"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=442"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}