We left our life in Vermont and relocated ourselves in Maine.\u00a0 Less than two hours from Mass General and surrounded by Kasey’s family.<\/p>\n
Our team from Massachusetts General Hospital was having major challenges working remotely and having local doctors do what the MGH\u00a0 people told them to do.\u00a0 Agreed\u2026very hard.\u00a0 Doctors have different opinions.\u00a0 In our case there is one at MGH.\u00a0 \u201cThe Hoch\u201d.\u00a0 He\u2019s the man.\u00a0 He\u2019s no BS, no bedside manner, just to the point.\u00a0 He keeps his eyes on the ball.\u00a0 He saves the emotional stuff for his practitioners and nurses.\u00a0 So in order to stay with extreme top notch care, we moved.\u00a0 It was the right thing to do.<\/p>\n
We sold our home.\u00a0 Thinned out a lot of things.\u00a0 Whittled down.\u00a0 We purged.<\/p>\n
Just south of South Portland there is a \u201chidden\u201d community called Cape Elizabeth.\u00a0 It all of the sudden stops being Portland and is a country drive through several State Parks and a small town.\u00a0 We\u2019ve rented a home where I can walk everywhere including the post office, schools, coffee shop, library, and so on.\u00a0 .\u00a0 I can really walk to everything.<\/p>\n
An equal and only other factor was the school system.\u00a0 It had to be top notch.\u00a0 We researched it hard and our schools here are nationally ranked nine out of ten.\u00a0 Not too shabby.\u00a0 There\u2019s no supervisory union.\u00a0 There no additional schools that are part of things.\u00a0 It\u2019s a standalone K-12 in three separate buildings, which are all on the same grounds. Which is just up the street.\u00a0 Which makes it ideal.\u00a0 I can walk the kids to and from school.\u00a0 We are so close that Coop has to walk.\u00a0 Sadie will too when she hits first grade.<\/p>\n
Our home is pretty standard.\u00a0 A small home in a neighborhood of small homes.\u00a0 I no longer want (or need) a 3,000+ square foot home with multiple living rooms, 4+ bedrooms, home theater, and so on.\u00a0 I want a cozy home that fits us all\u2026and that\u2019s it.\u00a0 The kids share a room and have the upstairs to themselves.\u00a0 It\u2019s a cape so it is smallish with dormers and fits them well.\u00a0 Kasey and my bedroom barely fits a queen size\u2026but we just sleep in there.\u00a0 Instead we have a first floor rather large office.\u00a0 This is where I work.\u00a0 And a large workshop in the basement where I can manufacturer those things I do and sell them on eBay.\u00a0 Well, once the kids go back to school.<\/p>\n
So we are settled.\u00a0 We are happy. We are glad to be out of our old house.\u00a0 But we’ll miss the friendships and support we received and are forever grateful.\u00a0 I know we’ll keep in touch.<\/p>\n
<\/p>\n
Now on to my health.<\/p>\n
I had a hard time waiting for another set of MRI images when I found out from the ones in June that my necrosis (good brains swelling badly)\u00a0 was out of control.\u00a0 The Hoch told me that a chemo called Avastin was being used for an alternate use which happed to\u00a0 be dealing with necrosis.\u00a0 And after two-and-a-half months, I was terrified what the new MRI was going to show.\u00a0 It was either A) the necrosis was as bad or worse.\u00a0 Furthermore, there is no cancer growth as this point.\u00a0 It was B.<\/p>\n
B!!!\u00a0 Splendid.<\/p>\n
So that\u2019s exceptionally really good.\u00a0 Next MRI three months.\u00a0 I need to Amtrak\/bus to Boston every two weeks for an infusion.\u00a0 Then I have two\u00a0 or three days of fatigue and I\u2019m OK again for the rest of the two weeks.\u00a0 We decided it\u2019s just saves us gas money for me to ride down mass-transit by myself.\u00a0Plus it gives me time to reflect on everything that happed to our family since this all began.<\/p>\n
We can hope for improved life quality.\u00a0 I sometimes need a cane to get around.\u00a0 Well, most of the time but I don\u2019t use it.\u00a0 I should.<\/p>\n
Well, that\u2019s the update.\u00a0 Sorry it took so long, but with moving and getting kids enrolled and other life things it got away from me.<\/p>\n
Thats all.\u00a0 Peace and love,<\/p>\n
Rob<\/p>\n","protected":false},"excerpt":{"rendered":"
We left our life in Vermont and relocated ourselves in Maine.\u00a0 Less than two hours from Mass General and surrounded by Kasey’s family. Our team from Massachusetts General Hospital was having major challenges working remotely and having local doctors do what the MGH\u00a0 people told them to do.\u00a0 Agreed\u2026very hard.\u00a0 Doctors have different opinions.\u00a0 In […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,3],"tags":[],"class_list":["post-485","post","type-post","status-publish","format-standard","hentry","category-medical-and-treatment","category-personal-observations"],"_links":{"self":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts\/485","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=485"}],"version-history":[{"count":6,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts\/485\/revisions"}],"predecessor-version":[{"id":489,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts\/485\/revisions\/489"}],"wp:attachment":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=485"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=485"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=485"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}