On this brain tumor eve\u2026one year ago, December 3rd, I had a moment of sheer terror before I woke 3 days later in the ICU.\u00a0 I had been intubated and stuck with so many probes and IVs they had to build an Erector set around me to keep in all in.\u00a0 What\u2026who\u2026where\u2026.<\/p>\n
I\u2019ve been extremely lucky to have my dear wife looking out for me and being my caretaker.\u00a0 She\u2019s a miracle worker. She is awesome.\u00a0 Enough said.<\/p>\n
Now is a much simpler lifestyle compared to where we\u2019ve ever been.\u00a0 We have a small rented house in Southern Maine.\u00a0 We have one economy mini-SUV.\u00a0 Our belongings have shrunken by 2\/3.\u00a0 If only I had known about this simpler existence we may have done it earlier.\u00a0 But we needed a nuclear implosion as a catalyst.\u00a0 I have a brain tumor.<\/p>\n
Treatment has been advanced.\u00a0 With proton therapy, Temodar, and Avastin things seem to be going well.\u00a0 My proton therapy went as planned.\u00a0 As soon as I finished that I got a heap-load of life-threatening necrosis. The Avastin took that away miraculously.\u00a0 I have no new cancer, and the Avastin is working.\u00a0 Unfortunately Avastin does not work forever.\u00a0 There will be a time when the Avastin stops working as I then work on clinical trials or whatever comes my way.\u00a0 Avastin carries extreme side effects.\u00a0 Like dropping dead from hemorrhaging or blot clots making their way to the lungs. There are many more but I save you the gory details.\u00a0 I am aware of one thing.\u00a0 Avastin is keeping me on the steady trail.\u00a0 Regardless of the side effects.\u00a0 Let\u2019s hope that none of them surfaces.<\/p>\n
We wish to thank all of you for your support and good wishes.\u00a0 I want to point out a couple (who wishes to be an anonymous) for their helping us.\u00a0 We were able to get out of the house we owned\u2026and that was a huge (and I mean HUGE) relief.\u00a0 You know who you are.\u00a0 We were complete strangers, aside from the acquaintance relationship my parents had with them.\u00a0 Take pride in helping out making an impossible situation possible.\u00a0\u00a0 We would have had a foreclosure for sure if it wasn\u2019t for you!<\/p>\n
As many of you know I am retired.\u00a0 I lack the speech, balance, and social life I once had.\u00a0 My cycling days of getting around are over.\u00a0 I wrecked my bike, almost slid under a tractor, and was out of it.\u00a0 An ambulance rushed to the scene and what was my transportation is over.\u00a0 That would have been a hoot.\u00a0 Here I am fighting the worst sorta heath issue and I get run over by an oil truck.<\/p>\n
So now I got my eye of these mobility scooters.\u00a0 That will give me the transportation I need without tipping over.\u00a0 It\u2019s got 3 wheels!\u00a0 I need transportation or I may just go insane.\u00a0 I\u2019m sitting around the house way more than I should.<\/p>\n
I\u2019m clearly not the writer I was.\u00a0 It takes me a lot of time to even type this message.\u00a0 One of the many results of having brain cancer.<\/p>\n
So that\u2019s the update.\u00a0 Life will be in 2 month stretches.\u00a0 I\u2019ll not know a prognosis because there isn\u2019t one to be had.\u00a0 I\u2019m stable at the moment and that is good.\u00a0 And I am thankful for that.<\/p>\n
This is Rob.\u00a0 Brain cancer patient.\u00a0 What a long strange trip it\u2019s been.<\/p>\n
(I know that I have plenty of emails to return.\u00a0 It\u2019s just hard working on the PC now.)<\/p>\n","protected":false},"excerpt":{"rendered":"
On this brain tumor eve\u2026one year ago, December 3rd, I had a moment of sheer terror before I woke 3 days later in the ICU.\u00a0 I had been intubated and stuck with so many probes and IVs they had to build an Erector set around me to keep in all in.\u00a0 What\u2026who\u2026where\u2026. I\u2019ve been extremely […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3],"tags":[],"class_list":["post-525","post","type-post","status-publish","format-standard","hentry","category-personal-observations"],"_links":{"self":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts\/525","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=525"}],"version-history":[{"count":19,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts\/525\/revisions"}],"predecessor-version":[{"id":544,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=\/wp\/v2\/posts\/525\/revisions\/544"}],"wp:attachment":[{"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=525"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=525"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.bromee.com\/zen\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=525"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}