Kasey and I are humbled and so very grateful for your love and support. We want you all to know how lucky we feel living in a neighborhood like we all do. We hope that you feel the same.
From our family to all of yours,
Thank you for you kindness and generosity. It all helps on so many levels.
Rob, Kasey, Cooper, Sadie, Schatzi, and Zenfish.
Hi all
Not much change on the big picture since the last post. We are simply waiting for some additional perspective from some very serious people about whether my inoperable situation is truly and actually inoperable. We hope to have that preliminary answer within 3 days. If Jedi Master Mitch feels it would be a worthwhile endeavor to go to San Francisco for some extensive brain function mapping, then off to the west we will go.
On a related front, the mounds of paperwork, insurance forms, specialist referrals, in and out of network provider approvals, images and biopsy results distribution, etc….is a management full time job just by itself. Kasey is simply going to need to take time out of the office at least until the treatment plans are in place and underway. Trying to do it any other way is asking for failure on some part.
Rarely in life have I personally experienced any large or small set of challenges with one top priority so clear over all others.
Well, it’s a little after 2am again, and here I am blogging. in just about 10 hours we sit down for the first of “the meetings” with the various really smart people who will share the detailed info and give us the perspective on things. And then over the next night or two some decisions will need to be made.
I’ve done well keeping my mind and spirit occupied with enjoyable things. Tonight my little Sadie Rose was sobbing at sleepytime so I seized the opportunity to snuggle in bed with her and get her to rest easy. About 1:55am she elbowed me in the nose and now I’m here blogging. Those love taps can hurt sometimes. And least it wasn’t the all-too-common kick in the pills. It’s hard to find any humor in pill kicking…even when it’s accidental from a sweet sleeping four-year-old.
I can no longer force the aforementioed speculation out of my front and center. What will I learn today? Routine treament for routine brain tumor? Will I need to find a sweet “Flock Of Seagulls” wig to enhance a thinning coif? Will it be some radical new technology that will make it all go away? Or am I just plain screwed? Questions questions questions flooding into the ping-pong-ball-enhanced mind perched upon my shoulders. What does the cosmos have in the plans for me?
One comfort is that I truly believe I am in very, very good care. The two doctors that are “in charge” of my particular case happen to be the guys that are the top dogs at the Mass General Brain Center. These are very serious dudes. Thier job is saving peoples lives. Talk about job pressure. Yikes.
It’s almost 3am now. My plan is to kick the woodstove back up, wrap myself in a comforter, and put something really tasty on my fancy audiophile headphones. And wait for the sun.
~R