Greetings! Been a little while since I’ve posted. The days seem to just slip by. That’s a good thing up here in Northern Vermont. It snowed a little yesterday. And the day before. Today, and this weekend, hopes to see maybe a leap into the very low 60’s.
Anyway…today’s blog title is pretty accurate on how I’m doing.
As “they” say, I’ve got good days and I’ve got not so good days. Actually I thnk “they” call them bad days. But I like to keep my glass half full if you know what I mean. When I first wake in the morning, it’s hard to get out of bed. But with a little prodding from the kids I roll out, take my morning cocktail of meds, and it can then go either way. I’m either feelin’ alright, or I’m nauseous and fatigued. But push through the pain and I can shine it on for most of the day. The weird symptoms with coordination continue, and I’ve got some weird “ticks” in my appendages. They almost seem to be “nano-seizures” because it’s my body doing something I’m not consiosly intending. I can really not suspect or blame it on medication, which was a theory before. But I’m off of anything that would cause the loss of coordiantion. So either my brain rewires itself, or it’s permanaent. Either way, it’s ok. I’m nimble. I can adjust.
Who misses the Captain and Tennille? The Captain played some funky keys. Not like Billy Preston or anything, but for someone having to split his time between playing the keys and being the captain of some vessel…he’s pretty OK.
I still don’t drive. I still can’t focus on more that one thing at a time. I’m easily confused by seemingly simple tasks. I walk into rooms and forget why I went there. But as long as I’ve got the Captain and Tennille and Billy Preston around I’ll be fine. I’m still Rob.
~R
