Feelin’ Alright…(mostly)
Greetings! Been a little while since I’ve posted. The days seem to just slip by. That’s a good thing up here in Northern Vermont. It snowed a little yesterday. And the day before. Today, and this weekend, hopes to see maybe a leap into the very low 60’s.
Anyway…today’s blog title is pretty accurate on how I’m doing.
As “they” say, I’ve got good days and I’ve got not so good days. Actually I thnk “they” call them bad days. But I like to keep my glass half full if you know what I mean. When I first wake in the morning, it’s hard to get out of bed. But with a little prodding from the kids I roll out, take my morning cocktail of meds, and it can then go either way. I’m either feelin’ alright, or I’m nauseous and fatigued. But push through the pain and I can shine it on for most of the day. The weird symptoms with coordination continue, and I’ve got some weird “ticks” in my appendages. They almost seem to be “nano-seizures” because it’s my body doing something I’m not consiosly intending. I can really not suspect or blame it on medication, which was a theory before. But I’m off of anything that would cause the loss of coordiantion. So either my brain rewires itself, or it’s permanaent. Either way, it’s ok. I’m nimble. I can adjust.
Who misses the Captain and Tennille? The Captain played some funky keys. Not like Billy Preston or anything, but for someone having to split his time between playing the keys and being the captain of some vessel…he’s pretty OK.
I still don’t drive. I still can’t focus on more that one thing at a time. I’m easily confused by seemingly simple tasks. I walk into rooms and forget why I went there. But as long as I’ve got the Captain and Tennille and Billy Preston around I’ll be fine. I’m still Rob.
~R
April 8th, 2011 at 8:48 am
I’m glad you’re still Rob. KEEP MOVING FORWARD! even if you’re forgetful and twitchy…I have faith that you’re getting “there”! : )
LOVE TO YOU ALL!
April 8th, 2011 at 9:19 am
hey Rob! so glad to hear from you. soooo glad that you’re keeping your SHINE on! you inspire me, man…
sorry to say, but I walk into rooms all the time and forget why I went in there, so I think that makes you pretty normal.
sending warm, lovin’ vibes your way, so you can keep fillin’ your glass and havin’ those GOOD days.
ttfn!
April 8th, 2011 at 9:40 am
so glad to hear from you! keep that positive energy force strong, and the sunshine doesnt hurt.
Tracy, Peter and Ellen
April 12th, 2011 at 12:15 am
Hey Rob/by,
Yes, I do miss The C&T. Darrell Dragon. What a cool name. Pardon the spelling. Muskrat love. That was the music that was current when I knew you for those brief years. You were at most 3 or 4 years old.
Found you on FB but won’t subject you again to those awkward memories I had as a young boy. I apologize if I got weird.
I must say you seem to have become what I knew my friend Jimmy was in my mind all along. A very decent and intelligent highly contributing member of society. A great father and husband. I admire you and your strength. I think of your struggle when I’m having a “tough” day. It puts things in perspective.
Your Mom directed me towards your blog. I’m thankful she reached out to me.
I’ve checked out your personal website and enjoy it. I noticed you were into music and radio and theater. I’ve played drums since 1977 and have just recently tip-toed into the idea of backyard theater as a side job. I love putting on a show. Love big images and big sound. Saw your set up at your campground get togethers and was impressed. I took some basic equipment camping last year here in Cali. and held an impromptu movie night. It was a blast.
Currently host movie nights in my own b/y and “most” of the neighbors love it. Some don’t and we’ll be seeing them in court in about a month. Decibels? What’s this thing called decibels? Whatever. It’s good for what ails ya!
You seem very equipped to deal with the situation you’re in. I collapse if someone says Boo! Not really, but maybe. Keep moving forward. One moment at a time, ’cause that’s how we get it.
I’ll keep reading as long as you keep posting. So keep posting.
Darrell
April 22nd, 2011 at 9:07 am
I remember as a young boy back in the ’70’s reading the paper. The Captain and Tennielle were coming to town. The paper referred to the Captain as the “Multitalented” Captain. I miss read it as the “mutilated” Captain. For the longest time I was asking people what happened to the Captain!? Out of frustration I began telling people he was amazing for being able to do what he does after such misfortunes. People would ask me “what misfortunes?” and I would make stuff up. I would point out how you never really get to see his legs…”
Hope that was worth a laugh. You are doing great, just keep on keepin’ on and you will see yourself improve. Congrats on getting home. Love to Kasey and kids. (Captain) Todd and Susan