Oligo Woe Is Me

Hair is falling out.
Big tangles on my pillow.
Might need a mohawk.

After a three day weekend it’s now back to the daily routine.  I was able to make my way over to Framingham to attend the Joe Val Bluegrass Festival and spend some time with some good friends.  Unfortunately I didn’t catch much of the main stage performers due to just simply being tired.  But with any Bluegrass event, all you really need to do is walk ten or twenty feet and there a handful of pickers just jamming right there in the hallways of the hotel.

I continue to be grateful for the support that just keeps coming.  It’s fuels my power packs and maintains my motivation, determination, and resolve. 

I’ve come to the conclusion that this conflict between me and Tawd is not a battle at all.  Tawd doesn’t know any better.  He’s just doing his job.  What he was designed, for whatever reason, to do.  It doesn’t even matter why.  All that really matters is that I’d very much like the the space he’s occupying back to myself.  So instead of a battle, its more like convincing this unwanted thing that it’s cozy place just isn’t cozy any longer.  I wish he had somewhere else to go…like a halfway house for unwanted brain tumors where he could learn new skills and lead a productive existence. But his only option is an early demise…and the grim reaper of brain tumors has Tawd on the list.

It’s now the Coffee and Chemo hour.  I have on some sweet ukulele music.  Not so much the generally familiar Hawiian type, but more diverse and textured that that.  I’d like to have a ukulele.  It’s such a happy instument.  It’d be a real challenge to play a bummer song on a ukulele.  Think about it.

Ready for the day.  Peace and love,

Rob

Just a brief hello to let everyone know things are going well and I’m feeling solid.

Something I also want everyone to know. I am so very grateful for all the support, emails, letters, cards, voicemails, books, etc. It’s important that you know that…because being honest it’s been a challenge to keep up with responding to them all. So please please please don’t feel like your love and support are not coming through. They are. They really are.

You all make a difference with my strength and ability to face this.

Thanks and love,

Rob