Welcome to 2012!
Good morning!
It’s been a while since I’ve written. I’ve been busy. Yeah..taking the kids to school, listening to music, hanging out, and generally goofing off. But then when the kids get home at 3pm…it make up for it with the chaos…so it’s even.
About my heath. I’ve been on Avastin for about 6 months and its proving to be a good thing. The only thing is it there’s nothing else that is “next” for me. Its Avastin…or whatever they might come up with next. Yes…I’ve embraced the reality. But “get busy living or get busy dying”.
My scooter arrives tomorrow. It’s a “pre-mobility” scooter so it’s sporty…as much as a mobility scooter can be. It’s not that I can’t walk…I do ok with a cool cane for longer walks. But this will get me out and around town.
Oh yeah. I got a tattoo. It says “JEDI” and has the symbol for my Jedi organization. My next one will be The Beatles famous picture of Abbey Road.
The wife and kids are doing great (other than the fact that dad has a terminal brain tumor). We’ve talked about it a lot. We enrolled in the TLC center for grieving children here in Portland. This is a great organization that helps families go through something like this…even though my aren’t currently grieving. Hopefully be a long time…but you know.
It snowing out for the first notable time this season. Of course it’s going to rain later so the 3 inches that we have right now will disappear and be a big mud puddle.
I have a HARD time typing. This damn keyboard doesn’t read minds! It took me 3 hours to write this!! (just kidding). But It takes me a lot longer than it would have 2 years ago.
I’d like to thank my folks for everything they’ve done and everything they do. It’s too much to detail so I won’t. I love you Mom & Dad.
So we just keep on truckin’ and look forward to spring. Stay tuned.
Rob
January 12th, 2012 at 10:03 am
Rob
Thanks for the update. Even though it takes you 2 hours to write it :), those of us living a distance away like knowing how you are doing.
There is an article about SymQuest our alma mater in today’s Free Press, with spin-master Larry on the front page.
http://www.burlingtonfreepress.com/article/20120112/BUSINESS08/201120301/SymQuest-serves-digital-clients-by-trying-fix-things-before-they-break?odyssey=tab|topnews|text|FRONTPAGE
I am happy to hear you are getting around and that the kids are keeping you young and alive!
So, when are you going to put a turbo charger on the scooter?
Take care my friend,
Z
January 12th, 2012 at 10:07 am
Nice wheels! Be careful out there on the road, better read up on scooter safety..
http://www.telegraph.co.uk/news/uknews/road-and-rail-transport/7982683/Highway-Code-for-mobility-scooters.html
January 12th, 2012 at 10:09 am
Love you, Buddy!
Hang tough! You’re all staying snugly in my good thoughts and prayers.
Thanks for taking the time to send this update.
Stay strong! YOU ROCK!!
LOVE!
Annie
January 12th, 2012 at 10:33 am
So glad to hear from you. Think of you guys often, glad to hear you continue to be positive and enjoying the Maine life. We miss you in the hood. Tracy
January 12th, 2012 at 11:16 am
love love love to you all!
xoxox
Vanessa & Gino and Mitchell, Mason & Ritter
January 12th, 2012 at 12:06 pm
Thanks for the frank update. Our hearts and souls are with you and Kasey and the kids. Get busy livin’ and we promise to do the same. Love T and S
January 12th, 2012 at 1:35 pm
Thanks for the update Rob! You are one tough Jedi. Love to you and the family.
January 12th, 2012 at 2:42 pm
Rob, We think of you often and keep you in our prayers. Thanks for keeping us updated. You have such a positive attitude – continue to keep it going. That’s quite the scooter – fit for a Jedi. It’s snowing in Waterville, forecast is 6 to 10. Hope your scooter has snow tires. 😉
January 12th, 2012 at 3:44 pm
Rob-thanks for the update! Love the new picture too!Your new wheels look sharp-stay ahead of the George Costanzas out there!
January 12th, 2012 at 5:50 pm
Hi Rob,
Happy New Year. You are truly an inspiration! I know you are a “techie” and probably are aware of this software, but Dragon Dictation might be a way for you to avoid typing. Take a look.
Take care,
jp
January 14th, 2012 at 5:13 pm
God bless You. Food for thought this spring if your up to it I bought a 30 ft hunter I would love for you and your family to take it out for as long as you want. Its a great trip from OC to capemay very easy boat to handle ill send you pics. also if you need a good captain im here for you as well.
January 14th, 2012 at 6:03 pm
Hi Rob, I don’t know if you remember us or not. We helped you out 2 years ago at Jenny Brook with the kids program. We helped the kids make the cardboard instruments. It was a memorable time for us. I want to let you know that we are praying for you and your family. We believe in miracles, we see them around us every day. It sounds like you are prepared for whatever God has in his plans for you, so we’ll join you in the busy- ness of living. If you want to get in touch we’re at dwillie@nycap.rr.com.
January 28th, 2012 at 11:09 am
Dear Rob and Kasey,
Thank you for keeping us updated. Rob, you have such a positive attidude. You are truly an inspiration to us all. God bless you and your loving family. We think of you often and want you to know that you are in our prayers daily. Love to all, Mary Ellen and Paul
February 6th, 2012 at 11:07 am
Rob,
I just read your update. I am glad to hear that you are still approaching things positively. Keep on pushing on and know that we will be praying for you and keeping you in our thoughts. Hope the family is well.
Take care!
-Jason
February 9th, 2012 at 2:38 pm
Great photo and scooter! Congrats on the tatoo, the boys in this family are jealous. Are you going to see the movie this weekend, it’s coming out they tell me in 3D. We think of you all often and wish you many prayers and many good thoughts. Maine is a wonderful place, love those lighthouses and seafood 🙂
February 12th, 2012 at 9:32 pm
We think of you often and will continue to send positive energy, thoughts and prayers your way.
Charlotte mentioned Cooper not long ago and wondered if he was “keeping his field journal on his family adventure.” We miss you here in the hood!
Lots of Love, The Sisson Family
February 14th, 2012 at 11:20 am
Hi Rob and Kasey
I’m Bogart’s wife (of http://www.mybraincancerdiary.com) and I’m so very glad to hear we are neighbors. Our son Sam turns 8 today and we’ll all be going to the 3:30 showing of Phantom Menace in 3D on thursday as part of the birthday events….I gather from an earlier comment that you might have some fans in your family?
It would be great to meet, sometime.
All my best,
Ava
February 14th, 2012 at 6:16 pm
Yes it would be great! I have a hard time using my right hand. Oh well.
Connact with my wife…802-363-3247
Cheers!