Ok…back to our originally scheduled programming
Sorry folks. Rob is wasted on Ambien. I have wrestled control of the computer away from him. He may require a horse tranquilizer to get to sleep.
The lowdown is that Rob has the dreaded tumor progression. After a lovely dormant period, that bastard Tawd is back.
We were told two likely scenarios today at the visit with the oncologist:
We continue with treatment (Avastin) and Rob begins to feel better and the tumor retreats.
We continue with treatment and Rob continues to decline, the tumor continues to grow and we arrange hospice care and we keep Rob as happy and comfortable as possible.
This will all play out over the next month or so. It will be obvious even without another MRI which scenario is going down.
After all this time, these are really the only options available to us. Other available drugs that Rob could try have a roughly 5% chance of making an improvement, but a huge chance of really unpleasant side effects which will dramatically diminish his quality of life.
We continue to laugh and we continue to love one another and we appreciate all your support.
Love,
Kasey
March 15th, 2012 at 9:03 pm
Rob and Kasey, please know we’re thinking of you and sending you our love. Wish we could be closer but I know your family must be a big help. Will continue to pull for you all. Take care. Love, the Anderson clan.
March 15th, 2012 at 10:23 pm
That Tawd is a persistent little devil, isn’t he? I am beaming out sonic energy waves to you all to kill this nuisance. Keep positive, though I can understand it’s hard after your doctor visit today. Although we’re not there right beside you, believe me, we’re feeling the punch too and are viciously punching back. In my nursing experience, Ambien has been known to sometimes have strange side effects…not to be taken long term. Hope something works…melatonin..trazadone…seroquil…good ol’ uncle Beny (Benedryl)…Tim O’Brien…. Thinking of you all…thanks for the post and please keep in touch. You are all a wonderful family and we’re thinking of you and hoping Tawd becomes history once again.
love,
Kim
March 15th, 2012 at 10:25 pm
Love to you, Rob and the kids. I miss you guys and think of you often. Everyone here in Vermont is pulling for you!
March 16th, 2012 at 4:04 am
Kasey, thank you for your message. Please call me whenever you are able, 802.380.1465. I would very much like to come see Rob and personally have a one-on-one confrontation with Tawd. That little “bastard” needs to know just how much he is unwelcome and unwanted right now. Love to you all…but not Tawd!
March 16th, 2012 at 4:52 am
Hi Kasey and Rob!
It feels like it has been forever since I had little Sadie in my classroom. If you guys ever make it to VT I would love to visit with her again. I will keep you guys in my thoughts and prayers!
March 16th, 2012 at 7:10 am
here’s to tumor regression and feeling better! my vote, and the vote of a bazillion other folks who love you. love and positive sonic energy can conquer anything!
i say all of us tuned into this blog should focus our love toward Rob’s good health every day at noon. take 60 seconds to send him and Kasey and the kids good, healing love vibes.
i’ve heard tell of such “group love” making positive differences in people’s health challenges.
Kasey and Rob, you amaze me!
mmmwha! xoxoxoxo
vanessa
March 16th, 2012 at 7:57 am
Please find enclosed all the positive energyand love I can muster to help you through these challenging times, you’re in our prayers. Mark L and clan.
March 16th, 2012 at 8:28 am
Sorry Kasey. We are all lucky people knowing that you are there to watch over Rob. Strength to you, Rob and the kids. Wish we could do more. Todd and Susan.
March 16th, 2012 at 1:18 pm
Thinking of you all often and sending positive vibes to ME!!!
March 16th, 2012 at 5:10 pm
Dear Kasey,
Thinking of you often. I am very sorry. You are a remarkable couple and I am very proud of all of you. We wish we could do more. You are in our thoughts and prayers daily. We love you. Aunt Mary Ellen and Uncle Paul
March 16th, 2012 at 8:37 pm
Still praying hard and keeping positive thoughts! We’re pulling for all of you – if you need anything that we can provide, let us know. Remember that we’re just a hop, skip, and a jump away!
The Hardings
March 18th, 2012 at 6:39 pm
Bromee family,
The Thompson family has really missed the
Bond that was formed as Tawd had made
It’s first appearance. We are really hoping
And praying that Rob improves and gets
To enjoy more wonderful times with the rest
Of the family.
Wishing you all the best.
Thompson family
March 19th, 2012 at 9:39 am
Beth and I think of you all often…and have kept you all in our prayers. We will keep sending positive thoughts your way, and pray for another regression. Keep loving and laughing, love is powerful, everything else are the minor details.
Peace and love,
Liz and Beth
March 19th, 2012 at 1:38 pm
Kasey and Rob, Thanks for the update. Today-March 19- is the feast day of St. Joseph, the father of Jesus. He also is the patron saint of Fathers and husbands. Just as he took care of Jesus and Mary, I know Rob is taking care of his family.hold a special place in God’s heart and in the hearts of all who know you. We pray to St. Joseph to give your family the graces and peace to get you through this illness and keep your lives together happy and fulfilling.
Rob, Remember, your cousins in Wilm. DE are always praying for you and wishing you well. God bless Kasey, Rob, Sadie, and Cooper.
Love Always, Marcia and Tony, and kids.
March 20th, 2012 at 10:21 am
Rob and Kasey,
I’ve been too long out of touch, now back in the thread to send you all love and
healing energy. I admire you all for keeping connected with life through all of
this. I know, what else can we do?, but I remember when I saw Rob the last time
before you moved to Maine. His words and his way were embracing the situation,
going through it all open-eyed, which was and is an inspiration to me, and also
hopefully to anyone who lets whatever life brings get them down. Thanks, Rob,
for showing me something fundamental. Again, I send you all my love and best
wishes, and hope to hear good news as the path unfolds.
Love,
Chris
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