Oligo Woe Is Me

Once again I am stunned by the generosity of my friends and family and others that have recently become friends who have taken interest in the Adventures of Tawd the Oligo.  A few posts ago I mentioned – just mentioned – that someday I’d like to get a cool ukulele and play happy songs.  Well as you might imagine, now is not really the time for me to go shopping for such a thing. 

So today I get an email from a good friend (also in the music making world) with a UPS tracking number.  Didn’t mention it.  Didn’t ask.  Was never discussed.  Just sent a ukulele.  He waited until he saw the tracking number saying it’s to be delivered today.  Can you believe that? 

Well, no real names to protect the innocent, but we’ll call him Franklin.  Dude, Franklin, my man…that was really awesome of you.  Thank you so much.  My first uke song will be titled and dedicated to you. 

If logic prevails, Tawd is evil…right?  And evil probably doesn’t like happy fluffy ukulele music.  Maybe it will sorta be like when the Feds use those sound cannons playing Barbra Streisand backwards and it makes the bad guys go bonkers and eventually just give up and run out and lay on the ground begging to be arrested and taken away from that awful sound!

So it’s happy fluffy music comin’ your way Tawd.  Get out while you can…

What surprises me is that I pictured just having a general lack of energy.  Lay on the sofa.  Watch Brady Bunch reruns.  Or maybe some Gilligan’s Island.  But as it turns out it’s really the constant desire to sleep.  Which leads to feeling guilty about not accomplishing anything. 

Although I am up every morning at 5am for my 1 hour cardio/weight routine, and then off to proton therapy, I am totally ready for nap-time at like 11am.  Then I sleep until the afternoon.  Then something to eat and maybe a movie.  Then bedtime.  Lather.  Rinse.  Repeat.  Well, I suppose this is it for the next several weeks.  The life of an Oligoastrocytoma owner. 

Woop!  Look at the time.  Wayyy past my nap-time! 

“Nap Time”

Very sleepy afternoon 
Pooh Bear takes a nap. 
He dreams of things 
with whistles and wings 
that go “rap-a-tap-tap, a-tap-tap.”